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Anyone else with Occult Ovarian Failure?

mak54321
05-22-2006, 02:09 PM
Looking for someone else who has this as well. It's the precursor to POF, or a version of it, depending on who you talk to. I still get my period every month, but have diminished ovarian reserve and high FSH levels.

Thanks,
Monica

BC-tnahope
05-25-2006, 10:00 PM
Hello I just was at RE today and I think that may be what he said I have. He said I can try another IVF but I will have to stim very aggressively. Are you still having treatment or what is your RE saying? Good Luck Tonya

mak54321
05-28-2006, 07:26 AM
I have tried a couple of cycles. The first cycle we had to cancel because I didn't stimulate any follicles. The second cycle we retrieved 9 eggs from 12 follicles. Unfortunately, none of them developed. We had PGD done and all of them had problems with them. So we didn't do a transfer. We have another consult coming up with our RE. I guess we'll see what he says. This is related to the diminished ovarian reserve. Apparently, I am dealing with poor egg quality and quantity. This was just last week. BTW - I am 37 yrs old. We used 600 IU of Gonal-F just so you know when you talk with your RE.

BC-tnahope
05-28-2006, 11:10 AM
So is the poor quality because of the Occult Ovarian Failure? My first IVF was cancelled on day 9, We had 7 follicles. My RE is talking about doing the micro-flare protocol. I am 30 and we are being treated for anti-sperm antibodies so this was a real surprise.

mak54321
05-28-2006, 02:13 PM
The "occult" part relates to the fact that it's a hidden condition. Since I'm getting my period regularly, there would be no real indicator that I'd be having fertility problems. Poor ovarian reserve indicates that either you have few eggs left, or they may be of poor quality, or both. OOF is the precursor to Premature Ovarian Failure or in otherwords, early menopause. Being in the lucky group (sarcastic), I get to get my period while not being able to produce quality eggs.

Boydid
06-20-2006, 04:52 AM
Hi I am 25 and had been dx with a high fsh level also a sign of poor ovarian reserve. This month we are starting IUI with injectables. I guess according to my RE I have a 5% chance ( that number freaked me out) anyway i have to go through 3 IUI then onto IVF for insurance reasons. I also get my period every month on the day. I can't believ this is happening to me. I thought since Iam so young I would have no problem. How are you dealng with things. Do you have any up lifting success stories. Good Luck!

BC-tnahope
06-20-2006, 08:13 AM
Hello Boydid, I responded to a question in the high FSH forum. When my first IVF was cancelled due to poor response and I got the results of my Clomid Challenge I was devastated and me RE gave me reason to beleive it was over for me. Since then I have switched REs and he beleives we have a chance. We will be starting IVF soon. Go to the High FSh forum and that thread you started there and check out the Forum someone told you about in there, I went there and it is wonderful. Good Luck. Keep us posted Tonya

mak54321
06-20-2006, 10:17 AM
I didn't mention that we were successful with our very first try with injectables almost 2 yrs ago and have a DD who is the joy of my life. I was given the doner egg talk OVER THE PHONE! My RE was not hopeful, but thought we should try stim to see if I responded at all. Turns out I did respond very well. The very next month we found out we were pg. This is our try for DC#2. I'm 37, and given my age now my RE is less hopeful than before. However, I did yoga for infertility, took fish oil and wheatgrass, eliminated dairy products, ate tons of nuts and proteins. I also did visualization after giving myself the shots at night. I would lie down on my bed with the lights darkened and have a talk with my ovaries. I tried to visualize the follicles growing in each ovary. Hey, it sounds hokey, but I did everything I could and it worked for me. There is hope. Do not give up on having your own DC. If you want to chat, just email me directly.

Boydid
06-20-2006, 02:16 PM
I really appreciate the quick resonse> Its been so comforting to me finding this site and knowing I am not the only one going through this. I mean I can tell myself there are so many people with these issues but until you talk you still feel all alone. I will try that talk with my ovaries hey whatever works right:> Anyway tomorrow I go for my HSG. I am alittle nervous I read that it hurts alot. I also heard that people have better luck conceiving. Any thoughts on that? Look forward to talking with youladies as I go on this journey. Hopefully we will all have succes stories to share one day. Ilana

BC-tnahope
06-20-2006, 06:04 PM
Ilana, I had some pain with my HSG but the RE I had at the time could not find the opening in my cervix and had to clamp my cervix OUCH. Other than that a little cramping and that is it. Good Luck and let us know how it goes. Tonya

mak54321
06-21-2006, 09:15 AM
Re: HSG - the 1st one I had was painful as my cervix was not fully open. I would definitely recommend having someone there with you afterwards just in case. However, my 2nd one was completely painless. I think it just depends on what your body's doing that day. Remember to deep breathe and relax thru the procedure as much as you can. That will help.

I forgot to mention I also did/am doing acupuncture. I truly believe this helped stimulate good eggs.

HTH.
Monica

candrews
07-18-2006, 02:07 PM
I guess that I have occult ovarian failure too - I had just assumed it was POF, but your definition of occult ovarian failure sounds just like me. I still regularly menstruate and have had "unidentified infertility" for the last 3 years. We had gotten to the point to do IVF and only then was it determined my FSH was 12.6 on day 3 and 20 on day 10. I am 30.

mak54321
07-18-2006, 07:42 PM
Candice -
Don't lose hope. There is still a chance to conceive. I have 1 DD who is 15 months & that was AFTER I was diagnosed and given the speech. There are a lot of things you can do, and if your FSH level fluctuates (as opposed to staying above 10), there is a belief that the chances are better to try when it's low. I know your RE will say that it's only as good as the worst FSH level, but they don't know everything - a lot of it is guessing. Cut out dairy, eat organics, do acupuncture & yoga. AND, try doing injectables at least once. That may tell you if you are a good responder or not to medication. I was, and got pg on the first round although my RE was extremely pessimistic. Let me know what's going on...
Monica

candrews
07-18-2006, 08:10 PM
Thanks for your encouragement!
I do respond to the injectibles - that is the bit of positive news here. I have had 2 rounds of IUI, though unsuccessful, I did produce and release eggs. I think that is positive anyway! I am fortunate with my RE, that he believes that we will be able to conceive with IVF, that it is our best chance at least.
I am starting back with accupuncture Friday - I hate it because it hurts. But I think I can handle once per week!
Are you in the process of a treatment at this time?
carly

BC-tnahope
07-18-2006, 11:12 PM
Hello Carly, I too have occult ovarian failure. I do not respond well to stims. We will be starting another IVF soon ER and ET is scheduled for the end of Sept. Good Luck and keep your chin up. My RE gives me a lot of hope. Tonya

teach123
07-19-2006, 07:45 AM
Hi everyone,

I do not respond well to stims at all. My first cycle was cancelled and my second IVF they only got 2 eggs in which only one survived. Today I found out 4 days after transfer that it was only 4 cells and a little fragmented. I hope beyond hope there is still a chance for implantation. One week to go for me to find out.

candrews
07-19-2006, 09:53 AM
My husband always reminds me that it just takes one for a baby. Good luck and I hope that you get great news next week.
Carly

teach123
07-19-2006, 01:26 PM
Thank you for the reply. It helps to hear that it really does just take one.

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