Murphy's Law
04-24-2006, 11:43 AM
I went to my ob/gyn today hoping she would draw my blood for anything she could think of as to why I've had recurrent m/c, the most recent was at 18 weeks. In addition, I told her I wanted a complete thrombophilia panel to be tested for MTHFR and Factor V. She told me she didn't think I had MTHFR. I told her I think I do and kindly asked her to run the test anyway. She obliged. So after 9 tubes of blood, I hope to have some answers in 2 or so weeks.
I'm not hoping for a diagnosis of anything, yet at the same time if I do get one, I will know what happened to us in January and hopefully be able to prevent it from happening again. For sure, if I do have MTHFR, I know I can get some great information from you ladies here! Thanks for all your info so far! I will keep you updated.
mckinleyrn
04-24-2006, 01:52 PM
Hi, I just joined the forum and I couldn't help wanting to write you and tell you how sorry I am for your losses. I've had multiple miscarriages as well and my baby girl was born dead 2/7/06 at 26 weeks. I hate that there are so many of us suffering like this. I just recently got all my blood work back and the only thing that showed up was MTHFR, but my OB/GYN is acting like it's no big deal. I know how it feels to just want some answers. I hope your blood work gives you some and again, I am so sorry for your losses, you are in my thoughts. :)
McKinley
P.S. the poem on Marshall's web site is beautiful and couldn't be more true
Murphy's Law
04-24-2006, 02:01 PM
Welcome, McKinley. Feel free to come on over to the Infant Loss Forum (under the Parenting section).
I am also very sorry to hear of your losses. If you have any questions on the MTHFR, feel free to ask the ladies here. Some of them have been really helpful to me just learning about it, which is what makes me suspect I may have it also. I don't know enough about it yet, so I'd be of no help to you there.
Thanks for peeking at Marshall's site.
Lauren2005
04-25-2006, 11:24 AM
Oh, I can't BELIEVE that a doctor would tell you she "doesn't think" you have MTHFR... like you'd have a big scarlet "M" on your forehead or something!! Good grief. None of us with MTHFR would seem to have it... There are women on these boards who had two or more thriving children before learning of their MTHFR diagnosis, and their doctors made silly, uninformed comments like "If you had MTHFR, you wouldn't have been able to have children." How rediculous is that? All of us MTHFR patients got here in the first place, right? LOL. You might or might not have it, but testing is good and information is power. Good for you for insisting on it.
I would like to encourage you to look at this web site also. This requires a leap of thinking, and many of us (myself included) resisted the ideas at first. Please read both online books and decide for yourself whether these issues might apply to you. If so, the solution would be so easy. http://www.fertilitysolution.com Dr. Toth is located in Manhattan.
Also, I read the poem on Marshall's web site and found it to be quite beautiful. :hug: It is such a tragedy that beloved babies are lost :hug: Your daughter's web site is also lovely, and she is such an adorable cutie. :)
Warmest wishes,
Lauren :hug:
BC-monarchbutterfly
04-26-2006, 08:13 PM
((laurie))
i hope that your tests give you answers one way or another. as you said at the very least if it comes back that you do have this then you know what you are battling which honestly i think sometime is haf the battle.
keep us posted on your results :)
(and i have to say 9 vials of blood :eek: ...and i thought i was the blood giving expert....;)
Murphy's Law
05-01-2006, 01:54 PM
So my ob/gyn called and all of my blood tests were clear. I am glad I don't have to worry about those specific disorders but I'm frustrated because she can't tell me why I lost my 18 weeker in January. She can't tell me what the risk of it happening again is. I want another baby, but really, how much more do I have to suffer through in order to get one? She gave me the "miscarriages are really common, you know" and "you're only 28, you have the rest of your life" speeches. That's NOT what I wanted to hear.
So, other than the autosomal recessive gene I carry for SMA, I don't have much to contribute to the genetics section of this board, I guess!
Thanks for sticking with me Ladies! I wish you all the very best!
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